I only heard of this test, “FM/a“, via a radio commercial, this week. I was immediately intrigued. As some of you may know, I know a fair amount about Fibromyalgia given that my ‘Central Pain’ book deals with it in much detail.
What worried me about this test is that we now know that fibromyalgia is a central nervous system disorder. I didn’t think we had any tests that could detect such disorders.
This test claims to test immune system imbalances. I, at least for now, am skeptical.
This test is supposed to ‘rule out’ other diseases. I am not sure I buy that.
The folks promoting this test — for MONEY, of course — have EXTENDED what was the original SCOPE of fibromyalgia. Fibromyalgia was about distributed, widespread pain. These folks have extended this to include symptoms of DEPRESSION as well. Given the EXTENDED scope a lot of folks — mainly women (alas) — will fall into the ‘dragnet’. I am sure that MOST in this vulnerable group will LIKE to be told they have fibromyalgia. To them it would be a relief, a vindication. I know. I have LIVED with ‘fibromyalgia’ — though I do NOT have it.
There used to be the 11-point DEFINITIVE TEST for fibromyalgia. That has now been DEBUNKED. Even the original creator of it, a supposed doctor, has admitted that he was wrong. Tens of millions of American women were told they had fibromyalgia based on that 11-point test. Well the test was FAKE.
I am not convinced.
Check out my book. You can read it for free in many places. SMILE.
Every once in a while I get an e-mail like this or someone leaves a review.
This is what makes it ALL WORTHWHILE.
I write to share knowledge with others. E-mails like this make me happy. SMILE.
This is the book she is talking about. It is available in PRINT & as an Apple, Android or Kindle eBook.
Search on ‘central pain’.
Check Category ‘books’.
I think so.
We met with her this morning, in Lebanon. NO. Not for I. For the wife. She had been referred to her.
When I read her bio — above — I just couldn’t believe what I was reading. Sounded true good to be true. The type of doctor I had been hoping to someday find.
Well, she proved to be as GOOD as what she claimed in the bio — if not better.
Young, but sure knows her stuff. Confident, self-assured, poised — but very low-key & non-pushy.
Wow. She actually understands PAIN! She knows the key role the brain & nervous system plays when it comes to pain. WOW. A doctor, at last, that is willing to talk about — even diagnose — central pain (now referred to as ‘Central Sensitization’). She was a revelation.
Over the last 14-year we must have seen at least 8 other so called ‘pain specialist’. They were all, in the end, charlatans. All of them put together (& they were all males) did not have her expertise, acumen & touch.
Wow. I was so impressed. (Have you already kind of got that impression that I kind of liked her?)
Well, I do know a bit about ‘pain’. I have written a book about it. SMILE. Yes, I gave her a copy & she was very gracious in thanking me for it.
I am looking forward to working with her. What a JOY.
Yes, she is native Chinese — in that she was born in China & did some of her schooling there. Great credit to China.
I the past I always tried to find Indian doctors. As of now, I am going to start by looking for Chinese doctors!
She (somewhat) restored my faith in DHMC.
Click to ENLARGE.
The 2 most salient points made in the article.
I have covered this same ground in my book.
Click to ENLARGE.
Just two relevant pages from my book.
This article is worth it JUST for this one CRITICAL message — said twice:
“Pain — in such cases — becomes the disease.”
“Their pain is not a symptom; it is a disease — one caused by a malfunctioning nervous system”.
So, I am delighted that this article HIGHLIGHTS this very crucial aspect of chronic pain — where pain itself is the disease.
The other key message in this article is that pain is felt (i.e., perceived), tolerated and handled by each person in a different way.
Some folks deal with pain better than others. Some can modulate their pain.
This is another topic dear to I. I talk about this in my ‘Central Pain’ book as well as in my books about ‘Brain Meditation’. Yes, you can teach yourself to handle pain — and do so better than others.
As is inevitable with all ‘National Geographic‘ articles there is a lot of ‘fluff’, ‘futures’ & ‘gratuitous color’. But, the key messages make up for that.
The author, who appears Indian, pussyfoots, shamelessly, around the opioid issue. Touches upon it multiple times BUT avoids taking the issue to its conclusion. NatG does not want to offend anyone!
The article also is way too generous when it comes to doctors. Again it tries not to offend anyone. So many doctors have NO CLUE when it comes to pain. I really do mean that. They are completely clueless.
But, if you can SKIM through this article. If nothing else you should learn that ‘pain can be THE disease — not just a symptom’.
Click to ENLARGE.
March 17 was Day #10.
Pain is still negligible!
Never expected this — in my wildest dreams, i.e., the minimal pain.
I thought I was going to be in agony. Not so. As I said in my very first post, it, i.e., pain control, was miraculous! Don’t know how they do it. But, they appear to have cracked what obviously has been an issue since the advent of life. How to perform major surgery without the patient being crippled by pain during the recovery.
Yes, for the first 50-hours I had a nerve block pain pump attached to my hip. Not sure what was in it, but reading the marketing blurb I gather it was not narcotic.
Other than the nerve block, all I used was Tylenol and Aleve. That was what was recommended. Tylenol first and if that doesn’t cut it, Aleve. I stuck to that initially but by Day #4 just fell into a 3 Aleve a day routine. For over 20-years Aleve has been my pain-medication of choice (next to straight Aspirin). I never take much pain medication, but when I have to I reach for the blue tablets. They don’t seem to bother me too much.
Yes, of course, I can carry on taking Aleve. But, I am a great believer in NOT taking pain medication if I can get away with it. I could be wrong, BUT my thinking is that if I use pain medication sparingly they will be more effective when I do take them. That is my theory.
By the evening of Day #8 pain really was negligible — though I have to admit I am more or less permanently attached to my ice unit. I would even say addicted. I know addiction is bad, so I checked. YEP, you guessed it. Too much cold therapy can be detrimental. So, I have cut back.
Also doing my knee exercises — heel slides. Did 90 on Day #10. I was told to shoot for 30. So, I am close.
No, I am not totally stupid — just partially stupid. So, I realize that the pain could come back, big time, without notice. Do NOT forget that I WROTE the book on “Central Pain Syndrome“.
Today, as such, is the 4th full-day, post surgery.
There is, touch wood, very little pain — as yet.
I hope it continues to be the case. It sure would be nice and a welcome relief.
The whole surgery experience, so far, has really been near miraculous. I am in total awe.
Yes, no question, the knee hurts, like billy-o if it bends (or moves). But, I am NOT supposed to bend it.
When I keep it straight and immobile, I have had little pain. I truly lucked out. Just hoping that pain does not suddenly engulf me and I am doing everything I can to make sure that I don’t end up with ‘Central Pain Syndrome‘ (CPS) six-months down the road. Right now I am hopeful. That I haven’t had major pain to drive my central nervous system (CNS) nuts will definitely stand me in good stead. IF I end up with CPS — I will rue the day.
I just cannot tell you how effective that ice therapy with the ‘ice pump’ is. I am convinced that it is what has helped me so much. I have it on about 16-hours a day. It is on now, set to 42°F, as I write.
All I have taken for medication so far is 325mg Tylenol and Aleve.
I have, so far, not needed any narcotics. I have two bottles, 60 pills, of opioids, one from ER and the other from the surgeon, unused. I hope this continues to be the case.
The nerve block was also amazing. It ran out Saturday night — right on schedule. They said 48-hours and it probably lasted about 54. Definitely felt some pain when it was gone. That is when I started taking Aleve.
Day 1 (Friday) — I took 7 Tylenols, much of it because I felt feverish.
Day 2 (Saturday) — 6 Tylenols during the day + 2 Aleves, late at night, after the nerve block was removed.
Day 3 (Sunday) — 6 Tylenols during the day + 2 Aleves at night.
Day 4 (Monday) — 1 Aleve so far and it is 5:30pm.
As far as I am concerned that is pretty amazing. Right now I feel no knee! It is pretty frozen — but don’t worry, I am not going to get frostbite.
Appears I am the lucky beneficiary of all of the concerted effort going into preventing the prescription of opioids.
Both the nerve block & ice machine blurbs tell doctors how they can be used instead of opioids. I am all in favor.
Seeing the surgeon tomorrow. Keeping fingers crossed.
So, just wanted to share with you in case, alas, knee surgery is to figure in your future. Based on my experience it might not be as painful as you might dread.
Well, I am still keeping fingers crossed. Pain is a funny ol’ thing. Don’t trust it — as far as I can throw it.
Effectiveness Of Opioids On Chronic Pain Again Questioned By ‘American Medical Association’ (AMA) Study.
The actual AMA study as published in JAMA —
Journal of the AMA.
BIG study — involved clinical trials of 26,169 patients! That is a boatload.
So, you can’t accuse this of not having been based on enough actual data.
Essentially it was condensing of data gathered in 96 separate trails. Hence the claim “Meta-Analysis”.
The findings here are consistent with what the AMA reported back in March 2018.
If you are still NOT convinced read the AMA report & my book.
It is worth finding out. It can save you a lot of pain … down the road.
Does CNN really think we are that stupid.
This has not been a good weekend for CNN. Their Pope series was not very good.
And then this.
What is the exclusivity here. Nothing new here. Fake news.
‘American Medical Association’ (AMA) Study On The Effectiveness Of Opioids On Chronic Back Pain — USELESS!
The Google News Headlines
March 9, 2018.
Waste of time & money.
This is NOT going to make a BLIND bit of difference.
This report will NOT convince a single doctor, patient or addict. They are all into this hook, like and bloody sinker.
This report actually made me angry because of its impotence.
It is like guns, the NRA and the politicians. Where are the opioid control laws? Just talk. Just chatter.
Common sense does NOT prevail. Money talks.
‘Transcranial Direct Current Stimulation’ (tDCS) For Depression & Chronic Pain Now Available INEXPENSIVELY.
With cranium referring to the ‘skull’, transcranial means through the skull.
So, of the 4 non-invasive cortical techniques now available, Transcranial Magnetic Stimulation (TMS) & Transcranial Direct Current Stimulation (tDCS) refer to brain stimulation methods, applied through the skull — in the form of magnetic pulses in the case of TMS and very-low electrical currents (applied to the forehead) in the case of tDCS.
Given its use of electrical currents, tDCS is ‘similar’ to ECT — the huge difference being that tDCS uses a fraction of the current applied with ECT — probably 1/400th. ECT can only be administered under general anesthesia and as such is an expensive and time-consuming process. tDCS can now be done at home in 20-minute sessions! Big difference.
TMS is also expensive.
For what it might cost you to get a few sessions of TMS, you can buy your own tDCS unit!
Think about it.
I will tell you more about tDCS in the coming days. OK?